Scarred Not Silent: Stories from the intersections of survival

Who’s Driving My Care? When to Speak Up in the Doctor’s Office

Rodney Washington Season 3 Episode 15

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0:00 | 4:10

There comes a moment in every patient’s journey when trust meets tension.

You sit across from the doctor. Numbers are discussed. Adjustments are made. The visit ends… but the questions begin.

In this episode, I walk through a recent follow-up where my tacrolimus levels came back high, and changes were made—just like that. No consultation with my original transplant team. No deeper pause. And now? Every ache, every strange taste, every shift in my body feels like a signal I can’t ignore.

But here’s the truth we don’t talk about enough:

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